The Official Patient's Sourcebook on Marfan Syndrome by Icon Health Publications PDF

By Icon Health Publications

ISBN-10: 058543137X

ISBN-13: 9780585431376

ISBN-10: 059783170X

ISBN-13: 9780597831706

This ebook has been created for sufferers who've determined to make schooling and learn a vital part of the therapy procedure. even though it additionally provides info invaluable to medical professionals, caregivers and different wellbeing and fitness execs, it tells sufferers the place and the way to seem for info overlaying nearly all themes on the topic of marfan syndrome (also Arachnodactyly; Contractural Arachnodactyly; Dolichostenomelia; Marfanoid Hypermobility Syndrome; Marfan's syndrome), from the necessities to the main complicated components of analysis. The identify of this publication comprises the notice legit. This displays the truth that the sourcebook attracts from public, educational, executive, and peer-reviewed study. chosen readings from quite a few corporations are reproduced to provide you a few of the most up-to-date respectable details to be had so far on marfan syndrome. Given sufferers' expanding sophistication in utilizing the net, plentiful references to trustworthy Internet-based assets are supplied all through this sourcebook. the place attainable, advice is equipped on tips on how to receive free-of-charge, fundamental examine effects in addition to extra specific info through the web. book and digital models of this sourcebook are absolutely interactive with all the websites pointed out (clicking on a link instantly opens your browser to the positioning indicated). Hard-copy clients of this sourcebook can kind mentioned internet addresses at once into their browsers to acquire entry to the corresponding websites. as well as broad references available through the net, chapters comprise glossaries of technical or unusual phrases.

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Extra resources for The Official Patient's Sourcebook on Marfan Syndrome

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In many cases, experts from the Data and Safety Monitoring Committee carefully monitor each clinical trial and can recommend that a study be stopped at any time. You will only be asked to take part in a clinical trial as a volunteer giving informed consent. What Are a Patient's Rights in a Clinical Trial? If you are eligible for a clinical trial, you will be given information to help you decide whether or not you want to participate. As a patient, you have the right to: · Information on all known risks and benefits of the treatments in the study.

Ask me questions? · Make me feel comfortable? · Address the health problem(s) I came with? · Ask me my preferences about different kinds of treatments for Marfan syndrome? · Spend enough time with me? Trust your instincts when deciding if the doctor is right for you. But remember, it might take time for the relationship to develop. It takes more than one visit for you and your doctor to get to know each other. htm. Seeking Guidance 37 Working with Your Doctor14 Research has shown that patients who have good relationships with their doctors tend to be more satisfied with their care and have better results.

Always bring any medications you are currently taking with you to the appointment, or you can bring a list of your medications including dosage and frequency information. Talk about any allergies or reactions you have had to your medications. · Tell your doctor about any natural or alternative medicines you are taking. · Bring other medical information, such as x-ray films, test results, and medical records. · Ask questions. If you don't, your doctor will assume that you understood everything that was said.

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The Official Patient's Sourcebook on Marfan Syndrome by Icon Health Publications


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